So this is my first admission to the new all singing all dancing Cf ward, got 1 day down only another 13 to go! Me + Dad had a quick nosey around a few weeks ago and were really impressed. I know being in hospital sucks but having these little home comforts doesn't make it so bad, I can still keep in contact with the outside world. Every one of the 12 rooms has:
* Flat screen television
* Desktop Pc
* Laptop
* Nintendo Wii
* Nintendo Wii fit
* Walk in wet room
* Special card entry (So much better, you haven't got to wait for the nurses to answer the door for you)
Pretty sweet if you ask me, just like being at home!

Spoke to the Doctor this morning and I just seem to baffle everyone, yesterday my FEV1 was at 45% so up from about 3 weeks ago when it was only 39%, but still this isn't where I should be at the minute. This is the first time i've had to spend the whole 2 weeks in hospital so i'm sure i'll get fed up towards the end of the week but i'll be kept on my toes with constant visits to the gym, i'll attatch some piccies and write again soon, hopefully about something exciting!

Stay happy and stay well!
xx

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Cf_ward_Sheffield_style.zip (5.46 MB)

  I now love camping which is something I didn't think i'd ever say, it was only 3 nights though so might change my mind if it was for any longer! My Cf diet must of helped me out, all my high energy foods kept me going all day and my super strength helped me carry all the bags for half an hour + up 2 hills go me Matt said he was very impressed with me wahoo. It's strange how much better I feel since I got back, something good came out of sleeping outdoors for 3 days. I did worry a little how the CONSTANT rain would effect me but touch wood I seem to be fine.

  I was lucky enough to see some awesome artists but I bet in America you wont of even heard of half of them! Paul Weller, Madness, Kasabian, Kings of Leon, Seasick Steve and the Courteeners just to name a few, we're already planning our summer next year 5 smelly days at Leeds I can't wait! It's been a bit of a short post today but I just can't seem to really get stuck into it, I shall try harder tomorrow. I've added on a couple of pictures of my luxury tent ;) and Me + Matt getting wet!

  Stay happy and stay well xx

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V_Festival.zip (3.4 MB)

  Picture 1 = Meconium Ileus 1991 style ;) As you can see both my scars are quite deep and change the shape of my stomach but it's never really bothered me or stopped me from wearing crop tops or a bikini (it's the lack of tan that does that!) I've also got a bruise sitting there nicely but that's just from my daily insulin injections.

  Picture 2 = Port number 1. You can only just see this scar which sits on my left side just under my arm pit. This was first inserted when I was 6 years old because I started to have IV's regularly so this was an easier solution to finding veins every 3 months. I don't really remember much about having this one put it but I do remember when it broke, ouch that was painful! The line detached itself which was a bugger so Mum + Dad were infusing my drugs straight into my veins. I had this one taken out when I was 11 I think + the surgeon didn't want to put another one in as I hadn't had IV's for around 18 months.

  Picture 3 = Port number 2. After having my port taken out I then began to need IV's more regularly, typical. So off I went to Sheffield again to have another one put in. Port was inserted on my right hand side just amongst breast tissue not practical. This port however just turned out to be a pain in the backside. A day after my surgery the Doc's noticed that my O2 saturation levels were quite low so put me on Oxygen to try + boost me up. That night however I found it increasingly difficult to catch my breath so Mum called the Dr who came to give me something to help me sleep + bring my O2 levels up, I started to panic because I couldn't breath then that's all I remember 5 days later I woke up in ICU to be told I had bi-lateral pneumothorax (collapsed lungs), brilliant :) We later think this was the surgeon that punctured my lungs. Skip to 4 years later of my port moving + not bleeding back it causes a blood clot in my jugular vein even better walking round with a fat neck! So out that one came in October last year.

  Picture 4 = Port number 3. Hallelujah! After moving to the Adult unit we decided a new port was needed, trying 4 times to get a long line in is not practical. The surgeon was really helpful as he talked about practical places to put it so it ended up on my left hand side attached to my rib which is good as it restricts movement. I'm just hoping this one is going to behave itself.

  Wow that was a long post! Hope you enjoyed reading.

  Stay happy and stay well
xx

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Scar_Tuesday.zip (3.75 MB)

  Since joining the Twitter world i've realised that i'm not the only person that thinks like this. However there are always some people that just like to put a downer on everything and I really don't see the need in it. It seems like they just crave the attention and like the sympathy a little too much. There's one person in paticular that I spoke to a few times that didn't seem to like what I said but to be honest I was only trying to be positive about the situations and show them that not everything has to be all doom and gloom. What kind of a role model would I be to Robyn if I constantly walked around talking about how much I hated everything?

  I know having Cf sucks, we all do but I think you have to accept it to get the most out of life. What good is it going to do being down all the time, you're just going to make things a whole lot worse than they have to be.

  Anyway that's my thoughts noted down for today!

  Stay happy and stay well
xx

  So when my Dad suggested starting a blog I wondered how it would turn out, it's not often i'm lost for words or anything to say but when it came to turning on Meredith (yes i'm that sad I named my laptop) I just sat and stared at the screen for a while until I eventually came up with this. It's nothing too exciting but it's a start and eventually i'll have a lot more to write about.

  Stay happy and stay well
xx